I can't stress how important it is to have a program on your phone that voice records. If you don't, turn the video on and put your phone face down. This has saved me lately - not only from liars, but also because I can't remember everything I'm told.
If you can have a witness with you, do both.
Have a list of your medications with amount taken, etc. It's less to have to remember.
Don’t bring photos or samples with you.
Don’t tell them what’s wrong. Just let them look. Let them ask questions.
Predicting what will be asked and having answers ready will take that much anxiety away. Be prepared for what you’ll do if they do certain things. For example: if they say it’s scabies, how will you respond?
If they say you’re delusional, what will you say?
Know your rights as a patient and remember, you’re paying them to diagnose and treat you. I had forgotten this and was so beaten down by doctors since this started. I honestly didn’t know my rights. I was locked up and my family couldn’t find me. For some reason I was too scared to even ask to leave. But where I was is where no one should be. Ever. I hope we can change how this keeps happening by supporting Rule123.
After the fact, get your records. If they lied, submit your request to change it and/or add your statement to it. This is where it’s also good to have a recording.
There are a lot of things that they are not supposed to do but I’ve found out they do it anyway because there’s no consequence. Yes, they can’t hold you more than 72 hours without a hearing. But when they do, what happens? Nothing. The laws must be changed. There’s emtala and hipaa that need to have immediate, written consequences. These should be on a federal level because we all deserve fair treatment. I find it sad we have to do so much to make people do their jobs.
I think it should be criminal to lie in a medical record. I don’t think they should have the option to change it, but must change it to reflect what truly happened.
It should be criminal to release private information. Period. These records are being shared and one wrong diagnosis prevents you from getting proper future care. If I don’t release those records, no one should see them. I don’t care who they are.
Hopefully the gaslighting we are experiencing can be stopped soon. I know I won’t stop yelling until something is done. Maybe that’s why this bad stuff is happening to me - God knows I have a big mouth.
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